Advance care planning is a process by which individuals express their healthcare preferences, values and priorities for the future. Through Advance Care Planning, individuals may identify a legally appointed Substitute decision maker. A substitute decision maker, or SDM, acts on behalf of someone when they are no longer able to make decisions for themselves. The SDMs role is to make decisions that are aligned with that individual’s previously expressed wishes. In Ontario, when a patient legally appoints a SDM this is called a Power of Attorney for personal care.

Even when an Advance Care Plan is in place, Dr Maria Muraca learned that unforeseen circumstances can come up. Maria was the Power of Attorney for her father, Michele, who died one year ago of idiopathic pulmonary fibrosis. Maria is a family physician, as well as an advocate and teacher of advance care planning. She is here to tell us about her personal experience with her father’s changing advance care plan and how that has shaped her discussions with patients and health care workers.